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Janez Mate: My Encounter with the Guillain-Barré Syndrome
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My Encounter with the Guillain-Barré Syndrome

Janez Mate

This book describes my experiences with the Guillain- Barré syndrom during the time of my hospitalisation at the Department of Neurology, and later during my rehabilitation at the University Rehabilitation Institute of the Republic of Slovenia – Soča. Especially during the second period I learned about experiences of fifteen other patients suffering from the same disease.

Lastnost Vrednost
Založba Knjižnica Miklova hiša
Prevod Gordana Klun
Spremna beseda Matej Mate, Miran Mate, Jože Levstek, Stane Hafnar
Ilustracije Ana Janež
Leto izdaje 2017
Strani 82
Jezik angleški
Tip datoteke epub
ISBN 9789619345092

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Dolg opis

This book has been in the making for a year and a half. During the first six months the author directly experienced the Guillain-Barré syndrom, during his treatment and rehabilitation. During the next twelve months the rehabilitation process continued, and the last nine months of that period were also dedicated to writing. I travelled the path which many patients had travelled before me. Perhaps it is not a coincidece that this book saw the light of the day at the occasion of the hundredth anniversary of the first description of the Guillain-Barré syndrome.

The literature on Guillain- Barré syndrome in the Slovenian language is very limited, and it is rather difficult to get information about the onset of the disease, treatment, recovery and – most importantly – about dealing with the consequences of the disease. I have not been able to find any material giving experiences of the patients during the time of disease, and rehabilitation. As I would have appreciated especially additional information describing the direct experiences of patients, I decided to write about the journey I made, acompanied by GBS. I hope it will be a guide, or at least a kind of a travel ratio for people who are, or will be travelling the same journey.

Stane Hafnar, accompanying words: “The book is non-technical, but contains the professional knowledge accessible to laypersons; it is enriched with impressions, perceptions and personal observations. It is an accurate chronicle, and as such even a visually tangible diary, combining a personal or even a literary story with a manual for general use. It is a lament and a complaint, which ultimately gives comfort.”

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